I believe that Mikayla was put on this earth to make a difference and, from the moment she entered this world, that is exactly what she has done. I am the proud mom to this sweet angel, Miss Mikayla Marie.
Mikayla was diagnosed with Aicardi Syndrome at the age of 2 ½ months. At this time, we were told that Mikayla would not talk, walk and would not live past the age of one. This was a lot to swallow for a young couple that thought their family life had just begun. My husband at the time was diagnosed with Lupus and disabled, and then to learn we have a special needs child... WHY? My first thoughts were, “What had I done to deserve this?” or “Is God mad at me?” We all played the blame game. Then one day I decided “NO, this isn't going to happen!” and from that day on I lived my life from the perspective of “NO GIVIN UP”.
When Mikayla was two years old, I became a single mom. Working a full time job, and taking Mikayla to therapy and doctor appointments kept me very busy. Mikayla was in and out of the hospital with pneumonia 44 times by the age of 5 years. At this time, Mikayla was able to attend public school and so another journey began. I always felt as if it was a fight, but I had to. I was her voice. Mikayla could not speak, she could not tell teachers, doctors or therapists her needs, likes or dislikes. I was her only advocate. It was with great pride that I took on this role, but it wasn't a walk in the park. I had to prove myself continuously. I had to apply for equipment and explain why I felt there was a need. I had to apply for special funding for “EVERYTHING”. My correspondence would always include a photo of Mikayla and a letter explaining / pleading for her to be chosen.
I decided to get her a safer bed, and the cost was $9000.00. Jenifer Lugenbeel from Norco started the process with Montana Medicaid. I was denied as the state felt since the bed was electric that it was a convenience to ME. The next step was court against Medicaid. After four times of driving to Helena, sending out packets to every government official in the state of Montana including the President of the United States, I was denied for the last time. But then I was told to put my daughter on the floor and there she would be safe. To be perfectly honest I was not accepting their answer.
THE FOUNDATION'S ROOTS
Sabrina Wisher, founder of the organization and mother to Mikayla, started the foundation 6 years ago when she decided to help other families get the medical equipment they need to support their loved ones affected by a disability. Wisher has since been recognized as Mother of the Year by American Mothers for her efforts and continues to fight for those who are differently abled get the quality of life they deserve.